Sickle Cell Treatment Demonstration Program


The objectives of this project is to support the development and establishment of systemic mechanisms to improve the prevention and treatment of sickle cell disease complications, including the coordination of service delivery for individuals with sickle cell disease; genetic counseling and testing; bundling of technical services related to the prevention and treatment of sickle cell disease; training of health professionals; and identifying and establishing efforts related to the expansion and coordination of education, treatment, and continuity of care for individuals with Sickle Cell Disease as authorized in Section 712(c) of the American Jobs Creation Act of 2004, Public Law 103-357.

General information about this opportunity
Last Known Status
Program Number
Federal Agency/Office
Health Resources and Services Administration, Department of Health and Human Services
Type(s) of Assistance Offered
B - Project Grants
Program Accomplishments
Not applicable.
Section 712(c) of the American Jobs Creation Act of 2004, P.L. 108-357
Who is eligible to apply/benefit from this assistance?
Applicant Eligibility
Eligible entities include, Federally-qualified health center, as defined in section 1905(10(2)(B) of the Social Security Act (42 U.S.C. 1396d(10(2)(B), nonprofit hospital or clinic, or university health center that provides primary health care, that: (1) has a collaborative agreement with a community-based Sickle Cell Disease organization or a nonprofit entity with experience in working with individuals who have Sickle Cell Disease; and (2) demonstrates that either the Federally-qualified health center, the nonprofit hospital or clinic, the university health center, the community-based Sickle Cell Disease organization or the Sickle Cell Disease experts who serve as consultants to the project have at least 5 years of experience in working with individuals who have Sickle Cell Disease.
Beneficiary Eligibility
Projects will benefit individuals with Sickle Cell Disease and health professionals who provide care for individuals with Sickle Cell Disease.
Applicants should review the individual HRSA notice of funding opportunity issued under this CFDA program for any required proof or certifications which must be submitted prior to or simultaneous with submission of an application package.
What is the process for applying and being award this assistance?
Pre-Application Procedure
Preapplication coordination is required. An environmental impact statement is required for this listing. An environmental impact assessment is required for this listing. This program is eligible for coverage under E.O. 12372, "Intergovernmental Review of Federal Programs." An applicant should consult the office or official designated as the single point of contact in his or her State for more information on the process the State requires to be followed in applying for assistance, if the State has selected the program for review.
Application Procedure
2 CFR 200, Uniform Administrative Requirements, Cost Principles, and Audit Requirements for Federal Awards applies to this program. HRSA requires all applicants to apply electronically through All qualified applications will be forwarded to an objective review committee. Based on the advice of the objective review committee, the HRSA program official with delegated authority is responsible for final selection and funding decisions.
Award Procedure
Notification is made in writing by a Notice of Award.
Contact the headquarters or regional location, as appropriate for application deadlines
Approval/Disapproval Decision Time
Final decisions are made approximately 2-3 months after receipt of applications.
Not applicable.
After initial award, projects may be renewed annually up to the limit of the project period upon the submission and approval of a satisfactory continuation application.
How are proposals selected?
General criteria are described in Program Regulations 45 CFR 51, and specific criteria are included in the notice of funding opportunity materials provided with application kits.
How may assistance be used?
All funds granted should be expended solely for carrying out the approved projects in accordance with Section 712 of the Public Law 103-357.
What are the requirements after being awarded this opportunity?
Not applicable.
Not applicable.
Grantees are required to maintain grant accounting records 3 years after the date they submit the Federal Financial Review (FFR). If any litigation, claim, negotiation, audit or other action involving the award has been started before the expiration of the 3-year period, the records shall be retained until completion of the action and resolution of all issues which arise from it, or until the end of the regular 3-year period, whichever is later.
Other Assistance Considerations
Formula and Matching Requirements
Statutory formula is not applicable to this assistance listing.

Matching requirements are not applicable to this assistance listing.

MOE requirements are not applicable to this assistance listing.
Length and Time Phasing of Assistance
Awards are made on an annual basis for the duration of the grant period, and payments are made through an Electronic Transfer System or Cash Demand System. Grantees drawdown funds, as necessary, from the Payment Management System (PMS). PMS is the centralized web based payment system for HHS awards.
Who do I contact about this opportunity?
Regional or Local Office
Program Office: Edward Donnell Ivy, MD, MPH, Genetic Services Branch, Division of Services for Children with Special Health Needs, Maternal and Child Health Bureau, Health Resources and Services Administration, Department of Health and Human Services, Room 18W56, 5600 Fishers Lane, Rockville, MD 20857; Telephone: (301) 443-9775.
Headquarters Office
Edward Donnell Ivy, MD, MPH
5600 Fishers Lane, Room 18W56
Rockville, MD 20857 US
Phone: (301) 443-9775
Website Address
Financial Information
Account Identification
(Cooperative Agreements) FY 18$3,474,358.00; FY 19 est $3,561,986.00; FY 20 est $3,574,986.00; FY 17$3,457,018.00; FY 16$3,327,345.00; -
Range and Average of Financial Assistance
FY 18 $347,436 - $1,042,304; $694,869 FY 19 $350,000 - $1,042,300; $712,397 FY 20 est. $350,000 - $1,042,300; $694,997
Regulations, Guidelines and Literature
This program is subject to the provisions of 45 CFR Part 92 for State, local and tribal governments and 45 CFR Part 74 for institutions of higher education, hospitals, other nonprofit organizations and commercial organizations, as applicable. HRSA awards are subject to the requirements of the HHS Grants Policy Statement (HHS GPS) that are applicable based on recipient type and purpose of award. The HHS GPS is available at
Examples of Funded Projects
Fiscal Year 2018 No current data available.


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