Sickle Cell Treatment Demonstration Program


To support demonstration projects for the development and establishment of systemic mechanisms and partnerships to improve the prevention and treatment of sickle cell disease (SCD) through coordination of service delivery, genetic counseling and testing, bundling of technical services, training of health professionals, patient and provider education and identifying and establishing other efforts related to the expansion and coordination of education, treatment and continuity of care programs for individuals living with sickle cell disease.

General information about this opportunity
Last Known Status
Program Number
Federal Agency/Office
Agency: Department of Health and Human Services
Office: Health Resources and Services Administration
Type(s) of Assistance Offered
Cooperative Agreements
Program Accomplishments
Not Applicable.
Section 712(c) of the American Jobs Creation Act of 2004, P.L. 108-357.
Who is eligible to apply/benefit from this assistance?
Applicant Eligibility
Eligible entities include, Federally-qualified health center, as defined in section 1905(10(2)(B) of the Social Security Act (42 U.S.C. 1396d(10(2)(B), nonprofit hospital or clinic, or university health center that provides primary health care, that: (1) has a collaborative agreement with a community-based Sickle Cell Disease organization or a nonprofit entity with experience in working with individuals who have Sickle Cell Disease; and (2) demonstrates that either the Federally-qualified health center, the nonprofit hospital or clinic, the university health center, the community-based Sickle Cell Disease organization or the Sickle Cell Disease experts who serve as consultants to the project have at least 5 years of experience in working with individuals who have Sickle Cell Disease.
Beneficiary Eligibility
Projects will benefit individuals with Sickle Cell Disease and health professionals who provide care for individuals with Sickle Cell Disease.
Applicants should review the individual HRSA funding opportunity announcement issued under this CFDA program for any required proof or certifications which must be submitted prior to or simultaneous with submission of an application package. This program is excluded from coverage under 2 CFR 200, Subpart E - Cost Principles.
What is the process for applying and being award this assistance?
Pre-Application Procedure
Preapplication coordination is required. Environmental impact information is not required for this program. This program is excluded from coverage under E.O. 12372.
Application Procedure
This program is excluded from coverage under 2 CFR 200, Uniform Administrative Requirements, Cost Principles, and Audit Requirements for Federal Awards. HRSA requires all applicants to apply electronically through

All qualified applications will be forwarded to an objective review committee. Based on the advice of the objective review committee, the HRSA program official with delegated authority is responsible for final selection and funding decisions.

Award Procedure
Notification is made in writing by a Notice of Award.
Contact the headquarters or regional office, as appropriate, for application deadlines.
Approval/Disapproval Decision Time
Final decisions are made approximately 2-3 months after receipt of applications.
Not Applicable.
After initial award, projects may be renewed annually up to the limit of the project period upon the submission and approval of a satisfactory continuation application.
How are proposals selected?
General criteria are described in Program Regulations 45 CFR 51, and specific criteria are included in the funding opportunity announcement materials provided with application kits.
How may assistance be used?
All funds granted should be expended solely for carrying out the approved projects in accordance with Section 712 of the Public Law 103-357.
What are the requirements after being awarded this opportunity?
The awardee will be required to submit performance and progress reports as well as status-federal financial reports (see the program announcement and notice of award for details for each required report). The awardee must submit a quarterly electronic Federal Financial Report (FFR) Cash Transaction Report via the Payment Management System within 30 days of the end of each calendar quarter. A Federal Financial Report (SF-425) according to the following schedule: A final report is due within 90 days after the project period ends. If applicable, the awardee must submit a Tangible Personal Property Report (SF-428) and any related forms within 90 days after the project period ends. New awards (“Type 1”) issued under this funding opportunity announcement are subject to the reporting requirements of the Federal Funding Accountability and Transparency Act (FFATA) of 2006 (Pub. L. 109–282), as amended by section 6202 of Public Law 110–252, and implemented by 2 CFR Part 170. Grant and cooperative agreement recipients must report information for each first-tier subaward of $25,000 or more in federal funds and executive total compensation for the recipient’s and subrecipient’s five most highly compensated executives as outlined in Appendix A to 2 CFR Part 170 (FFATA details are available online at Competing continuation awardees, etc. may be subject to this requirement and will be so notified in the Notice of Award. Cash reports are not applicable. Progress reports are not applicable. No expenditure reports are required. No performance monitoring is required.
In accordance with the provisions of 2 CFR 200, Subpart F - Audit Requirements, non-Federal entities that expend financial assistance of $750,000 or more in Federal awards will have a single or a program-specific audit conducted for that year. Non-Federal entities that expend less than $750,000 a year in Federal awards are exempt from Federal audit requirements for that year, except as noted in 2 CFR 200.503.
Grantees are required to maintain grant accounting records 3 years after the date they submit the Federal Financial Review (FFR). If any litigation, claim, negotiation, audit or other action involving the award has been started before the expiration of the 3-year period, the records shall be retained until completion of the action and resolution of all issues which arise from it, or until the end of the regular 3-year period, whichever is later.
Other Assistance Considerations
Formula and Matching Requirements
This program has no statutory formula.
This program has no matching requirements.
This program does not have MOE requirements.
Length and Time Phasing of Assistance
Awards are made on an annual basis for the duration of the grant period, and payments are made through an Electronic Transfer System or Cash Demand System. See the following for information on how assistance is awarded/released: Grantees drawdown funds, as necessary, from the Payment Management System (PMS). PMS is the centralized web based payment system for HHS awards.
Who do I contact about this opportunity?
Regional or Local Office
See Regional Agency Offices. Program Office: R. Lorriane Brown, RN, BS, CPHP, Genetic Services Branch, Division of Services for Children with Special Health Needs, Maternal and Child Health Bureau, Health Resources and Services Administration, Department of Health and Human Services, Room 18A-19, 5600 Fishers Lane, Rockville, MD 20857; Telephone: (301) 443-9775.
Headquarters Office
Edward Donnell Ivy, MD, MPH 5600 Fishers Lane, Room 18-A19, Rockville, Maryland 20857 Phone: (301) 443-9775
Website Address
Financial Information
Account Identification
(Cooperative Agreements) FY 14 $4,455,000; FY 15 est $3,405,599; and FY 16 est $4,455,000
Range and Average of Financial Assistance
Based on FY 2013
$356,618; $356,618.
Regulations, Guidelines and Literature
This program is subject to the provisions of 45 CFR Part 92 for State, local and tribal governments and 45 CFR Part 74 for institutions of higher education, hospitals, other nonprofit organizations and commercial organizations, as applicable.

HRSA awards are subject to the requirements of the HHS Grants Policy Statement (HHS GPS) that are applicable based on recipient type and purpose of award. The HHS GPS is available at
Examples of Funded Projects
Fiscal Year 2014: No Current Data Available Fiscal Year 2015: No Current Data Available Fiscal Year 2016: No Current Data Available


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