Newborn Screening Data Repository and Technical Assistance Center

 

This announcement solicits applications for the Newborn Screening Data Repository and Technical Assistance Center.  The purpose of this cooperative agreement is to enable the awardee to: Enhance, improve, or expand the ability of State and local public health agencies to provide screening, counseling, or health care serviceds to newborns and children having or at risk for heritable disorders; Assist in providing health care professionals and newborn screening laboratory personnel with education in newborn screening and training in relevant and new technologies in newborn screening and congenital, genetic, and metabolic disorders; Develop and deliver educational programs (at appropriate literacy levels) about newborn screening counseling, testing, follow-up, treatment, and specialty services to parents, families, and patient advocacy and support groups; and Establish, maintain, and operate a system to assess and coordinate treatment relating to congenital, genetic, and metabolic disorders.

Deleted 07/04/2014 (Archived.) HRSA-14-089 Agency: Department of Health and Human Services
Office: Health Resources and Services Administration Cooperative Agreement 1 https://grants.hrsa.gov/webExternal/SFO.asp?ID=f0bc90ac-f15f-4d80-8ad9-484f6e25048f As cited in the Public Health Service Act, § 1109 (42 U.S.C. 300b-8), eligible applicants include a State or a political subdivision of a State; a consortium of two (2) or more States or political subdivisions of States; a territory; a health facility or program operated by or pursuant to a contract with or grant from the Indian Health Service; or any other entity with appropriate expertise in newborn screening.  Applicants should have significant familiarity and experience with newborn screening programs, quality assessment and improvement, public health, database development and management, and collaboration with public health and community programs, professional organizations, and State and Federal agencies, as well as other programs and organizations that collaborate to improve and provide newborn screening.  Any applicant that can serve in a national capacity to coordinate services among the state newborn screening programs is eligible to apply. 05/05/2014 This program does not have cost sharing or matching requirements. Department of Health and Human Services, Health Resources and Services Administration, HRSA Grants Application Center, 910 Clopper Road, Suite 155 South, Gaithersburg, MD, 20878
CallCenter@HRSA.GOV
CallCenter@HRSA.GOV $850,000.00 Awards range from $850,000.00 to $850,000.00